{pdf download} We the Scientists: How a Daring

We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine. Amy Dockser Marcus, Amy Dockser Marcus

We-the-Scientists-How-a.pdf
ISBN: 9780399576133 | 256 pages | 7 Mb

• We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine
• Amy Dockser Marcus, Amy Dockser Marcus
• Page: 256
• Format: pdf, ePub, fb2, mobi
• ISBN: 9780399576133
• Publisher: Penguin Publishing Group

Download We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine

Epub free ebook download We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine (English Edition) ePub iBook 9780399576133

A Pulitzer Prize–winning reporter’s moving narrative of a group of patient advocates who are revolutionizing the way medical research is conducted. For more than half a century, medical advances have been driven by investigators launching experiments inside labs. Science is often conducted in isolation and geared toward the long view. This is the story of a group of people who tried to force the lab doors open: parents whose children had been diagnosed with a rare and fatal genetic condition known as Niemann-Pick disease type C. The disease prevents cells from processing cholesterol, which leads to the progressive loss of the brain’s and the body’s ability to function. Recognizing that there would never be a treatment in time to save their children if things stayed the same, the parents set up a collaboration with researchers and doctors in search of a cure. Reconciling different views of science took work. The parents, doctors, and researchers didn't always agree—among themselves or with each other. But together they endeavored to accelerate the development of new drugs. The parents became citizen scientists, identifying promising new treatments and helping devise experiments. They recorded data about the children and co-authored scientific papers sharing findings. They engaged directly with the FDA at each step of the drug approval process. Along the way, they advanced the radical idea that science must belong to us all. Amy Dockser Marcus shows what happens when a community joins forces with doctors and researchers to try to save children’s lives. Their extraordinary social experiment reveals new pathways for treating disease and conducting research. Science may be forever changed.

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We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine This title will be released on February 14, 2023.
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We the Scientists: How a Daring Team of Parents and Doctors
A Pulitzer Prize–winning reporter's moving narrative of a group of patient advocates who are revolutionizing the way medical research is conducted.
Browse Books: Medical / Research | New Orleans, Louisiana
Stem Cell Therapy: A Rising Tide: How Stem Cells Are Disrupting Medicine and We the Scientists: How a Daring Team of Parents and Doctors Forged a New 
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We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine This title will be released on February 14, 2023.
Browse Books: Medical / Physician & Patient
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